Recessive means that both copies of the responsible gene must have a disease-causing change (pathogenic variant) in order for a person to have the disease. Genes, like chromosomes, usually come in pairs. These professionals must protect the personal information in the same way as we do.Īll our paper and computer records are stored and processed securely, away from public access.Autosomal means the gene is located on any chromosome except the X or Y chromosomes (sex chromosomes). Your personal information to health professionals or organisations that need it, including your GP, health visitor and consultant paediatrician. We only ever publish information as statistics and we never publish personal details. This includes checking your baby’s records if your baby is found to have a condition after having a screening test which showed a ‘not suspected’ result. We also keep personal details to make sure that the standard of our service is as high as possible. If you need more information about this, you can: We will need to handle some of your and your baby’s personal information.
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